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Anger and Forgiveness"Are You There Alone?"10 Good Questions about Life and DeathA Casebook of Ethical Challenges in NeuropsychologyA Companion to BioethicsA Companion to BioethicsA Companion to GenethicsA Companion to GenethicsA Companion to Muslim EthicsA Cooperative SpeciesA Critique of the Moral Defense of VegetarianismA Decent LifeA Delicate BalanceA Fragile LifeA Life for a LifeA Life-Centered Approach to BioethicsA Matter of SecurityA Mirror Is for ReflectionA Mirror Is for ReflectionA Natural History of Human MoralityA Philosophical DiseaseA Practical Guide to Clinical Ethics ConsultingA Question of TrustA Sentimentalist Theory of the MindA Short Stay in SwitzerlandA Tapestry of ValuesA Very Bad WizardA World Without ValuesAction and ResponsibilityAction Theory, Rationality and CompulsionActs of ConscienceAddiction and ResponsibilityAddiction NeuroethicsAdvance Directives in Mental HealthAfter HarmAftermathAgainst AutonomyAgainst BioethicsAgainst HealthAgainst MarriageAgainst Moral ResponsibilityAgency and AnswerabilityAgency and ResponsibilityAgency, Freedom, and Moral ResponsibilityAging, Biotechnology, and the FutureAlbert Schweitzer's Reverence for LifeAlphavilleAltruismAltruismAmerican EugenicsAmerican PsychosisAn American SicknessAn Anthology of Psychiatric EthicsAn Introduction to EthicsAn Introduction to Evolutionary EthicsAn Introduction to Kant's Moral Philosophy Ancient Greek and Roman SlaveryAnd a Time to DieAnimal LessonsAnimal RightsAnimal Welfare in a Changing WorldAnimals Like UsApplied Ethics in Mental Health CareAre Women Human?Arguments about AbortionAristotle on Practical WisdomAristotle's Ethics and Moral ResponsibilityAristotle's WayAssisted Suicide and the Right to DieAutonomyAutonomy and the Challenges to LiberalismAutonomy, Consent and the LawBabies by DesignBackslidingBad PharmaBad SoulsBarriers and BelongingBasic Desert, Reactive Attitudes and Free WillBeauty JunkiesBefore ForgivingBeing AmoralBeing YourselfBending Over BackwardsBending ScienceBernard WilliamsBetter Humans?Better Than WellBeyond BioethicsBeyond ChoiceBeyond GeneticsBeyond HatredBeyond Humanity?Beyond LossBeyond LossBeyond Moral JudgmentBeyond SpeechBeyond the DSM StoryBias in Psychiatric DiagnosisBioethicsBioethicsBioethics and the BrainBioethics at the MoviesBioethics Beyond the HeadlinesBioethics Critically ReconsideredBioethics in a Liberal SocietyBioethics in the ClinicBiomedical EthicsBiomedical EthicsBiomedical EthicsBiomedical EthicsBiomedical Research and BeyondBiosBioscience EthicsBipolar ChildrenBluebirdBodies out of BoundsBodies, Commodities, and BiotechnologiesBody BazaarBoundBoundaries and Boundary Violations in PsychoanalysisBraintrustBrandedBreaking the SilenceBuffy the Vampire Slayer and PhilosophyCapital PunishmentCase Studies in Biomedical Research EthicsChallenging the Stigma of Mental IllnessCharacter and Moral Psychology Character as Moral FictionChild Well-BeingChildrenChildren's RightsChimpanzee RightsChoosing 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Controversies in Values and ScienceCutting to the CoreCyborg CitizenDamaged IdentitiesDeaf Identities in the MakingDeath Is That Man Taking NamesDebating ProcreationDebating Same-Sex MarriageDecision Making, Personhood and DementiaDecoding the Ethics CodeDefining DifferenceDefining Right and Wrong in Brain ScienceDefining the Beginning and End of LifeDelusions of GenderDementiaDemocracy in What State?Demons of the Modern WorldDescriptions and PrescriptionsDesert and VirtueDesire, Practical Reason, and the GoodDestructive Trends in Mental HealthDeveloping the VirtuesDid My Neurons Make Me Do It?Difference and IdentityDigital HemlockDigital SoulDignityDignityDisability BioethicsDisability, Difference, DiscriminationDiscrimination against the Mentally IllDisordered Personalities and CrimeDisorders of VolitionDisorientation and Moral LifeDivided Minds and Successive SelvesDoes Feminism Discriminate against Men?Does Torture Work?Doing HarmDouble Standards in Medical Research in Developing CountriesDown GirlDrugs and JusticeDuty and the BeastDworkin and His CriticsDying in the Twenty-First CenturyEarly WarningEconomics and Youth ViolenceEmbodied RhetoricsEmerging Conceptual, Ethical and Policy Issues in BionanotechnologyEmotional ReasonEmotions in the Moral LifeEmotions in the Moral LifeEmpathyEmpathy and Moral DevelopmentEmpathy and MoralityEmpirical Ethics in PsychiatryEncountering NatureEncountering the Sacred in PsychotherapyEngendering International HealthEnhancing EvolutionEnhancing Human CapacitiesEnoughEros and the GoodErotic InnocenceErotic MoralityEssays on Derek Parfit's On What MattersEssays on Free Will and Moral ResponsibilityEthical Choices in Contemporary MedicineEthical Conflicts in PsychologyEthical Dilemmas in PediatricsEthical Issues in Behavioral ResearchEthical Issues in Dementia CareEthical Issues in Forensic Mental Health ResearchEthical Issues in the New GeneticsEthical LifeEthical Reasoning for Mental Health ProfessionalsEthical TheoryEthical WillsEthically Challenged ProfessionsEthicsEthicsEthicsEthics and AnimalsEthics and ScienceEthics and the A PrioriEthics and the Discovery of the UnconsciousEthics and the Metaphysics of MedicineEthics at the CinemaEthics at the End of LifeEthics Beyond the LimitsEthics Case Book of the American Psychoanalytic AssociationEthics Done RightEthics ExpertiseEthics for EveryoneEthics for PsychologistsEthics for the New MillenniumEthics in CyberspaceEthics in Everyday PlacesEthics in Health CareEthics In Health Services ManagementEthics in Mental Health ResearchEthics in PracticeEthics in PsychiatryEthics in PsychologyEthics in Psychotherapy and CounselingEthics of PsychiatryEthics without OntologyEthics, Culture, and PsychiatryEthics, Sexual Orientation, and Choices about ChildrenEvaluating the Science and Ethics of Research on HumansEvilEvilEvil GenesEvil in Modern ThoughtEvil in Modern ThoughtEvolution, Gender, and RapeEvolutionary Ethics and Contemporary BiologyEvolutionary Psychology and ViolenceEvolved MoralityExperiments in EthicsExploding the Gene MythExploiting ChildhoodFacing Human SufferingFact and ValueFacts and ValuesFaking ItFalse-Memory Creation in Children and AdultsFat ShameFatal FreedomFellow CreaturesFellow-Feeling and the Moral LifeFeminism and Its DiscontentsFeminist Ethics and Social and Political PhilosophyFeminist TheoryFinal ExamFirst Do No HarmFirst, Do No HarmFlashpointFlesh WoundsForced to CareForgivenessForgivenessForgiveness and LoveForgiveness and ReconciliationForgiveness and RetributionForgiveness is Really StrangeFoucault and the Government of DisabilityFoundational Issues in Human Brain MappingFoundations of Forensic Mental Health AssessmentFree WillFree Will And Moral ResponsibilityFree Will and Reactive AttitudesFree Will, Agency, and Meaning in LifeFree?Freedom and ValueFreedom vs. InterventionFriendshipFrom Darwin to HitlerFrom Disgust to HumanityFrom Enlightenment to ReceptivityFrom Morality to Mental HealthFrom Silence to 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Posthuman FutureOut of EdenOut of Its MindOut of the ShadowsOverdosed AmericaOxford Handbook of Psychiatric EthicsOxford Studies in Normative EthicsOxford Studies in Normative Ethics, Volume 7Oxford Textbook of Philosophy of PsychiatryPassionate DeliberationPatient Autonomy and the Ethics of ResponsibilityPC, M.D.Perfecting VirtuePersonal AutonomyPersonal Autonomy in SocietyPersonal Identity and EthicsPersonalities on the PlatePersonhood and Health CarePersons, Humanity, and the Definition of DeathPerspectives On Health And Human RightsPharmaceutical FreedomPharmacracyPharmageddonPhilosophy and This Actual WorldPhilosophy of BiologyPhilosophy of Technology: The Technological ConditionPhysician-Assisted DyingPicturing DisabilityPilgrim at Tinker CreekPlaying God?Playing God?Political EmotionsPornlandPowerful MedicinesPractical Autonomy and BioethicsPractical EthicsPractical Ethics for PsychologistsPractical RulesPragmatic BioethicsPragmatic BioethicsPragmatic NeuroethicsPraise and 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and the Good Life?TestimonyText and Materials on International Human RightsThe Moral Psychology of AngerThe Age of CulpabilityThe Age of CulpabilityThe Aims of Higher EducationThe Almost MoonThe Altruistic BrainThe American Psychiatric Publishing Textbook of Forensic PsychiatryThe Animal ManifestoThe Animals' AgendaThe Art of LivingThe Autonomy of MoralityThe Beloved SelfThe Best Things in LifeThe Big FixThe Bioethics ReaderThe Biology and Psychology of Moral AgencyThe Blackwell Guide to Medical EthicsThe Body SilentThe BondThe Book of LifeThe Burden of SympathyThe Cambridge Companion to Virtue EthicsThe Cambridge Companion to Virtue EthicsThe Cambridge Textbook of BioethicsThe Case against Assisted SuicideThe Case Against PerfectionThe Case Against PunishmentThe Case for PerfectionThe Case of Terri SchiavoThe Challenge of Human RightsThe Character GapThe Code for Global EthicsThe Colonization Of Psychic SpaceThe Commercialization of Intimate LifeThe Common ThreadThe Connected SelfThe 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How Much?Why Some Things Should Not Be for SaleWisdom, Intuition and EthicsWithout ConscienceWomen and Borderline Personality DisorderWomen and MadnessWondergenesWould You Kill the Fat Man?Wrestling with Behavioral GeneticsWriting About PatientsYou Must Be DreamingYour Genetic DestinyYour Inner FishYouth Offending and Youth Justice Yuck!
Its hard to keep up with the rush of information and opinion coming out on genetics and human cloning.. Even without our fully realizing it, genetic technology is entering almost every area of our lives. Discoveries of links between human DNA and different illnesses, including mental illnesses, regularly get covered on prime time television news. The Hollywood movie Gattaca paints a bleak future in which people become equated with their DNA code, and discrimination becomes scientific. (In Austin Powers, Dr. Evil clones himself into "Mini-Me.") College professors offer new courses with unwieldy titles such as "Ethics in the New Genetic Era." Publishers put out a plethora of new books on the science of genetics and what it means for society. Some authors try to alert a sleeping public what is going on and why it should be alarmed. Jeremy Rifkin and Ruth Hubbard are two such authors, with similar ideas.
Before I had read this The Biotech Century, Id notice that when Id hear other bioethicists mention Jeremy Rifkins name, their faces would take on a look of disapproval. Hes an activist rather than an academic, and he takes a strong stand against the new genetic technology. Hes a prolific author: the inside cover lists thirteen other books he has written or co-written. He is good at getting media attention, and pulling "publicity stunts." (I imagine that I take on a similar expression when people talk to me about Peter Breggin author of Toxic Psychiatry.) This raises the suspicion that Rifkins book is slanted, presenting a biased version of the facts, twisting them to his purpose. Nevertheless, I have to report that I found it impressive and gripping.
Especially useful is the vast number of facts that Rifkin has collected. The book is written in journalistic style, quoting many different sources of information, and is packed full of cases from the recent history of biotechnology. These include the developments in agriculture as well as in medicine, and the issues that have arisen to do with the patenting and ownership of genetic information. Of course, there are developments all the time, which creates a danger that The Biotech Century will become out of date before the end of this year. Fortunately, Rifkin has created a website associated with the book, which provides his most recent writings and interviews, and so will help keep the reader up to date with relevant information.
Ruth Hubbard, the main author of Exploding the Gene Myth, is also critical of the genetic revolution. First, she believes that genes are given too much credit for their role in our lives: we are mistaken if we think that knowledge and control of the human genome will solve all our problems. Focusing on genes takes our attention away from other factors that are also important, and are often easier to control. Second, the sees the way that government, private industry, and the law are using genetic information in ways which will make society worse. It will increase discrimination and decrease liberty.
Hubbard is a scientist (professor emerita of biology at Harvard University) and so it is not surprising that she puts more emphasis than Rifkin on the scientific aspects of the issues. For the most part, though, the writing is accessible to the lay person. She explains that we are being far too reductionist in our approach to genes. In only very few cases will there be a simple relation between ones genetic code and ones health, because so much depends on our environment.
This book was originally published in 1994. A new afterword was added in 1997, and a new preface has been added this year, which helps somewhat to keep the book up to date. Still, Rifkins book is overall the more thorough of the two, because it holds so much detail.
Both authors outline the history of the Human Genome Project. They both go back in time to a century ago, when eugenics started to become popular in the US. Rifkin produces an astounding quote from Theodore Roosevelt:
Criminals should be sterilized and feeble-minded persons forbidden to leave offspring behind them
the emphasis should be on getting desirable people to breed.
The eugenics movement in the US had some success. By 1935, over 20,000 people were involuntarily sterilized, mostly in California. The eugenics movement in Nazi Germany in some ways took its lead from what was going on in the US. We look back on pre-World War II eugenics with horror, and rightly so. Both authors imply the new genetic technology will reintroduce eugenics, in more subtle ways of course, but possibly with just as alarming results.
Both books also detail how genetic code has become the property of corporations and universities. In my experience, most people when they learn this are amazed that this is the case and are shocked that it has been allowed to happen. They are disgusted by the attempts of health management organizations to exclude some people with genetic disorders from health care coverage on the grounds that their conditions are "pre-existing." Even in cases of apparently benign uses of genetic information, such as expectant parents finding out if their unborn baby is healthy, it is important to note that pre-natal testing can carry some risk, and sometimes results in spontaneous miscarriage.
By the end, each author has managed to present a powerful case that there are grave dangers inherent in this new biotechnology. They do not condemn all new technology wholesale, but they do urge that we need to use this it with great caution, and we should avoid the simplistic ways of talking about genetics into which the media has already fallen.
What strikes me as odd, though, is the implicit assumption that there is something especially problematic about the new genetics. American society is already one of great disparity of opportunity. People already have fewer opportunities because they were not born into the right families. The media is simplistic about everything, not just genetics. Millions of people have no health insurance and no reliable access to basic health care. Major corporations have amazing power in peoples lives. Yet, Americans seem to be relatively content with, or at least resigned to, this state of affairs. This being so, Im perplexed as to what makes genetic technology so special. If one accepts the criticisms of genetics made by Rifkin and Hubbard, then one has to question most other aspects of American society too.