Why I Burned My Book and Other Essays on Disability
Full Title: Why I Burned My Book and Other Essays on Disability
Author / Editor: Paul K. Longmore
Publisher: Temple University Press, 2003
Review © Metapsychology Vol. 9, No. 6
Reviewer: Gerda Wever-Rabehl, Ph.D.
There is a poem by T. S. Eliot on the use of
memory, and this use, says Eliot, is liberation — not only from the future as
well as the past. Reading the impressive collection of essays by Paul Longmore
reminded me of this poem. Because it seems to me that Longmore’s eloquent
insistence on remembrance is one of its chief merits. Longmore commemorates the
eugenic movement for instance, and observes eugenic influences in contemporary
debates such as that on assisted suicide. He remembers the elimination of
thousands of disabled people in the Third Reich. He remembers Randolph Bourne
and the struggles and victories of the early members of the League of the
Physically Disabled. And these commemorative tales are not isolated stories — they are part and parcel of a comprehensive critique of our collective pathologizing tendencies when it comes to disability. Longmore elucidates that the
supremacy of medical perspectives tends to limit our view on disability to the
idea that a disability is a mere individual and private ‘limitation.’ Longmore
deliberates the impact of this persuasive yet limited perception of disability
on the identity formation of individuals with a disability. Furthermore, he
draws implications of such perceptions for the study of disability. These
implications are, in Longmore’s view, largely negative, as the social
construction of disability, strongly influenced by the medical paradigm of pathology as a ‘personal misfortune’, defies systematic socio-historical and political
analyses of disability. Yet in his remembrance of small and great moments in
the overall rather tragic history of people with disability, Longmore turns the
narrow medical focus on disabled individuals into a historical and political
collective thing.
Herein
lies the strength of Longmore’s work — in remembering the ongoing
marginalization of millions, Longmore challenges and disrupts dominant
ideologies of ‘normality’ and disability. Furthermore, he offers an alternative
in writing the study of disability as social history. In the words of German
philosopher Immanuel Kant, this remembrance is not related to "thought in
general" but rather to an effort to imagine the particular. And Longmore
enables us to vividly imagine the particulars of lives lived at the margins. In
that sense, his acts of commemoration are potentially liberating for us all — indeed, his forceful remembrance of marginalized lives and voices illuminates how
the exclusion of the voices of people with disabilities from our collective
agreement on how we remember the past affects us all. In exploring the social constructedness
of these particulars, these personal histories, biographical as well as
autobiographical, the text invites us to explore ways in which we, as humans,
can transcend the violence of self/other binaries.
Longmore
invites inquiry into the more comprehensive question of how to transcend the
violence present in the mutual exclusivity of the binaries of self and other
when he asks pertinent and penetrating questions such as: What is community?
What is equality? What constitutes a minority group? How do we understand
concepts such as autonomy, citizenship and progress? In contemplating these
questions, disability studies have an enormous philosophical and political
contribution to make. Yet the potential of ‘liberation,’ to stick with Eliot’s
metaphor, does not become entirely fulfilled. Longmore’s activist mannerisms
get in the way of in-depth contemplation. Self-addressed ‘supercrip’, he
perceives a splendid book review, written by an able-bodied person, as an
insult. He asks: "Would a postpolio superscrip do anything less? How
characteristically disabled of me to undertake so grandiose a project" (p.
232.) This aggravating and antagonistic rhetoric inundates the text from the
angry (indeed, ‘inflammatory’) title onward and undermines Longmore’s argument,
as it is the very same dichotomizing and exclusive ‘insider / outsider’
rhetoric as Longmore is attempting to disrupt.
Notwithstanding
this reservation, Longmore’s text is a worthy read for its intellectual
sensibility. The historical sections on Randolph Bourne, the League of the
Physically Disabled and the sections on Protests and Forecasts are written with
great passion and compassion, and are as a consequence marvelous to read. Longmore
is the voice of the silenced and the message of these voices is addressed to us
all, forcing us to re-think our collective imperatives on how we ought to
remember the past. In giving voice to the silenced, he forcefully disrupts
prevailing ideologies of normalcy and disability and makes a start at
contemplating ways in which we, as human beings, able and disabled-bodied
alike, can transcend the violence of self/other, insider/outsider binaries.
© 2005 Gerda Wever-Rabehl
Gerda Wever-Rabehl holds a Ph.D from Simon Fraser University, and has published
extensively in the areas of social science, philosophy and philosophy of
education.
Categories: Ethics